Friday, May 1, 2009

Learning about cystic fibrosis

Nothing stitching related tonight. After finishing the little Blackbird Designs sampler, I needed to take a little break from stitching and get some stuff done around the house.

I just wanted to post a link here to a website about the disease cystic fibrosis and the son of one of my co-workers. I have been trying to help out when I can with a little fund raising through our company.

Cystic Fibrosis Foundation

A Cure 4 Lil' Chris

Lil' Chris was diagnosed very early, making it possible for his mom and dad to do as much as possible to keep him healthy. In Ohio, genetic testing for this disease is offered to the parents and Michele and Chris (the dad) knew they were carriers, so they were able to determine that their son had CF very soon after his birth. Their 3 month old daughter does not have CF.

Michele's blog is a wealth of information about the day to day stuff that goes on in family that has a CF child. I can only imagine what it is like to have a child that has any congenital disease or developmental problems.


Lil' Chris' Mom said...

Thanks Barb for linking my blog to yours. I never knew you were a blogger too:) You do a great job!! I can't believe you make all this stuff!! You are very talented;-)
Thanks again,

GoldenAngelsWorks said...